Reading Elizabeth’s musings on Elizabeth Fritzl as well as the book Room, made me think of the term “shut in.” Growing up in the church and even as a pastor, we had members that everyone called the “shut ins,” meaning those who were sick or elderly and could not leave home. We would make special arrangements for the pastor or a Eucharistic Minister to take communion to them in their home each week. A wonderful way to remind members that even though you are not able to be in worship and fellowship with us at the church building, you are not forgotten. We see you, we value you, and most importantly, you are important and seen by God.
Although almost all the hospice patients we serve would be considered “shut in,” the forgotten ”shut ins” are the caregivers. Depending on the arc of the disease process that the patient travels, a caregiver could be juggling full-time work, a family, and caring for an elderly parent or spouse for years. And by caring I mean very practical stuff–preparing meals, feeding, toileting, bathing, making sure medications are taken properly, and trying to find actitivities that are enjoyable even with declining abilities. The path of caregiving is a much needed but lonely one.
I recently read an interesting paper by The Remington Report on “How the Web and Social Media have Influenced the Home Care Decision-making Process.” They surveyed 210 unpaid caregivers who had cared for an ill or ailing family member or spouse within the last 12 months. Although they are highlighting how caregivers are using the web to discern which home health or hospice organization to choose, I focused on how their research shows that for many caregivers the web offers an outlet for community that until now has been there but difficult if not impossible to access.
“We found that 92 percent of caregivers considered the Web either a “very valuable” or “somewhat valuable” source for healthcare information and 65 percent actively read news sites or blogs…
61 percent indicated that they were either “somewhat likely” or “very likely” to dialogue with other caregivers in an online caregiver forum or on a social media site.”
The good news is that although still feeling trapped at home, caregivers do have and seem to be starting to access community through the web. So, virtual reality can help us cope with actual reality. However, the next question of course should be about the quality of the community that is found.


