The current issue of Time magazine features a special report on how our understanding and treating of what is believed to be Alzheimer’s disease is changing. Drawing upon the data presented in Maria Shriver’s study The Shriver Report: A Woman’s Nation Takes on Alzheimer’s, the report shares humbling truths such as:
- “5 million Americans currently suffer from Alzheimer’s disease, a number that will grow to 13.4 million by 2050,” and
- “Health experts estimate that a 65-year-old has a 10% risk of developing Alzheimer’s and that baby boomers currently approaching peak age for the disease (60 to 80) will add $627 billion in Alzheimer’s-related health care costs to Medicare,” and
- “Nearly 10 million women either have Alzheimer’s or are taking care of someone who does, and that number is expected to triple in the next 40 years.”
Although the data is staggering, there are several quotes from the personal essays in the report that truly took my breath away.
Dr. Mary Ann Becklenberg, a retired family therapist who spent much of her career serving in hospice care, writes of her experience in the early stages of Alzheimer’s. She offers this advice to people with the disease:
“Be gentle with yourself. This disease requires that you lower expectations of yourself…The fear is losing yourself, knowing that you won’t bring this self to the end stage of your life.”
I contemplate what I would feel like to know that I am losing my sense of self…
Nancy Gibbs writes quite profoundly on how we cope with becoming caregivers for our parents. Painting a picture of how the stress of “raising kids and lowering parents” affects us, she writes,
“Relationships are elastic only to a point. If you are a wife, mother, and daughter or a son, father, and husband and all those ties are pulled taut, you are no long a net. You are a sieve, and the first thing to slip through is peace of mind.”
And finally, Patti Davis, writes of her journey caring for her father, Ronald Reagan, and the lessons she has learned from that role:
“Mostly we learn the hard lesson of acceptance. It does no good to ask why. Just be there. Show up and listen, even to the silences. Beneath the surface of the disease is a soul that can’t have Alzheimer’s, a soul that still wants to be heard.”
Amen.

